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description=Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) patient & (amateur) advocate. Posts on ME/CFS and chronic illness/spoonie*/invisible illness.*A spoonie is somebody with a chronic...;
keywords=chronic illness,mecfs,myalgic encephalomyelitis,spoonie,chronic fatigue syndrome;

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Text of the page (random words):
tom s me cfs and chronic illness page tom s me cfs and chronic illness page 1 5m ratings 277k ratings see that s what the app is perfect for sounds perfect wahhhh i don t wanna tom s me cfs and chronic illness page irish myalgic encephalomyelitis chronic fatigue syndrome me cfs patient amateur advocate posts on me cfs and chronic illness spoonie invisible illness a spoonie is somebody with a chronic illness who can relate to this analogy https bit ly 3muhklr posts archive somebody shared the following today saying i found this video on tiktok and it explains m e so well and i saw it and thought to myself i relate so much here s the tiktok link https www tiktok com jeremyandrewdavis video 7135061608316833070 pinned post spoonie myalgic encephalomyelitis chronic fatigue syndrome me cfs chronic illness 17 162 notes aug 25th 2022 open in app facebook tweet reddit mail embed permalink proposed framework for personalized severity assessment in me cfs to capture variation in me cfs severity and life impairment across patients and time 2024 frontiers longitudinal cytokine and multi modal health data of an extremely severe me cfs patient with hsd reveals insights into immunopat myalgic encephalomyelitis chronic fatigue syndrome me cfs presents significant challenges in patient care due to its intricate multisystem frontiers mecfs myalgic encephalomyelitis chronic fatigue syndrome severe me severeme 42 notes jul 22nd 2026 open in app facebook tweet reddit mail embed permalink alt energy points chart https ltcovh prod acquia sites com sites default files 2024 02 energy 20envelopeeng pdf ltcovh prod acquia sites com modified from be ainsworth et al compendium of physical activities an update of activity codes and met intensities pwme cfs spoonies spoonie spoonie chronic illness mecfs longcovid chronic fatigue 14 notes jul 22nd 2026 open in app facebook tweet reddit mail embed permalink alt world me alliance one page explainer on their medical education hub medical education hub one pager_english version_world me alliance_2026 a global collaboration of 27 organisations across 21 countries me cfs medical education hub https worldmealliance org medical education google docs link to medical education hub medical education hub world me alliance full guidelines continuing professional development severe me quick reference summaries medicines español français deutsch italian nederland world me alliance description from action for me posted in may this worldmeday help improve awareness by sharing your story of why medical education matters using the hashtag educateme and ask healthcare professionals to read the explainer on how the medical education hub can help the hub contains trusted evidence based resources to help healthcare professionals supporting people with me me is a chronic debilitating condition that affects at last 67 million people worldwide but the lack of training and education among clinicians can cause delayed diagnoses harmful or inappropriate treatments and repeated experiences of stigma and disbelief read and share their one page explainer medical education hub one pager_english version_world me alliance_2026 a global collaboration of 27 organisations across 21 countries me cfs medical education hub https worldmealliance org medical education google docs mecfs myalgic encephalomyelitis educateme pwme chronic fatigue syndrome 12 notes jul 22nd 2026 open in app facebook tweet reddit mail embed permalink alt while views aren t the only metric to assess the value of social media output sometimes it s useful to reach a significant number of people so i m pleased that the extra time energy i have been putting into my fb page is yielding results mecfs myalgic encephalomyelitis cfs pwme long covid 8 notes jul 16th 2026 open in app facebook tweet reddit mail embed permalink alt news release 8 jul 2026 eye problems after covid 19 can now be explained https www eurekalert org news releases 1134768 impaired pupil function was furthermore linked to headaches difficulty reading text in focusing the eyes it d be interesting to know how many had general fatigue pem etc long covid longcovid eyes mecfs postcovid 11 notes jul 10th 2026 open in app facebook tweet reddit mail embed permalink alt fair media won t stop psychologizing long covid media won t stop psychologizing long covid media outlets that trumpet their journalistic integrity have used their prestige to launder an unproven anti science conspiracy theory abou fair screenshot from latest science for me weekly update long covid longcovid mecfs postcovid postcovid19 7 notes jun 29th 2026 open in app facebook tweet reddit mail embed permalink npc non player character chronic illness chronically ill spoonies spoonie chronicillness 55 notes jun 27th 2026 open in app facebook tweet reddit mail embed permalink alt i have just watched this and thought it was good emerge australia recognising pem early in your patients is critical for safe and me cfs informed care pem can be hidden patients may appear well during appointments but experience significant deterioration afterwards you can learn more about pem and pacing https zurl co nny1w mecfs post exertional malaise pem long covid pwme 17 notes jun 26th 2026 open in app facebook tweet reddit mail embed permalink alt new uk long covid and me doctors and clinics uk long covid and me doctors and clinics lcmedata org myalgic encephalomyelitis mecfs pwme long covid longcovid 9 notes jun 26th 2026 open in app facebook tweet reddit mail embed permalink alt another excellent blog by fred rossi who is well worth following the patient who isn t supposed to exist the patient who isn t supposed to exist i taught cognitive behavioral therapy cbt before long covid made me a patient wired got the story exactly backward darthfoo substack com nominally on the recent controversial wired article but the points are pretty general alt alt so the community is not a mob protecting a story it is a population that watched a treatment paradigm hurt its own members and now flinches when the same machinery rolls out under a new name that flinch is learned and it was learned the hard way alt long covid longcovid mecfs pwme postexertionalmalaise 272 notes jun 21st 2026 open in app facebook tweet reddit mail embed permalink next