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supinesublime skip to content supinesublime menu home about hallo again july 2 2019 marjojo2015 1 comment sad to say that i have deteriorated since i declared a textling break last year physically as well as cognitively so glad though that brain has room for writing again after months with shutters down only feel myself when i can be creative have started a new blog as a self grounding measure proof of a kind of positive continuity esp on nothing goes days hope to bring the wider world in more open heart open eyes open mind whenever i can peek out from under the tonnage of myalgice come and visit me https chronicjots wordpress com dear comrades in resilience december 31 2018 marjojo2015 leave a comment may the coming year be peaceful may it be filled with kindness joy connection may each and everyone have plenty to thrive on and a place to call their home may we tear down walls launch rescue boats make people safe may we stand up even lying down to violence and power over may treatment for m e perhaps a cure move within reach may we care for the earth our beautiful abode love and hope to all textling 107 december 20 2018 december 20 2018 marjojo2015 leave a comment what a challenging year have pulled my last xmas greetings into the present framed wider enough with judgment and exclusion may 2019 be full of positive surprises politically healthwise may we come together textling 106 june 19 2018 june 20 2018 marjojo2015 3 comments i m taking a textling break friends feel in need of an incremental change at least while this blasted illness rumbles on have started a new project a series of short poems called humbles want to play a little more experiment each humble zooms in on and distils one aspect of a day a way of marking tired time lest it slips away unattended hope to achieve a form of creative consistency as well m e will feature but also broader themes this is my favourite so far my grieving visual artist self perked up most aren t as elaborate though just a couple of lines at times or one word with letters settling for a rest yet eager to be heard trying to post daily for a month on facebook and instagram you can also find me on twitter keep in touch twitter marjojo2004 instagram marjojo2017 facebook marion michell 3 textling 105 may 25 2018 may 25 2018 marjojo2015 leave a comment mag plucked reasons to be thankful from egregious days i mean to follow suit shall practise gratitude conscientiously this morning s list to linger over note to self details eased loose from concertina folds of anxious mind hearing the voices of my family over the telephone means so much writing when hope and mettle need retouching ferocious skull pain dulling a meditation buddy chums who keep in touch meryl my sparkle hearted carer humming while she works the taste of cauliflower oven baked bedecked with turmeric knowing mag for a little while and these last few weeks scattered yet finely tuned exchanges with two bedfest friends one old one new who seem to see me from their bedsteads on another continent kandice kendrick thank you here s looking at you too audio when i can textling 104 may 23 2018 may 24 2018 marjojo2015 leave a comment spring has arrived with caveat the blackbird in my garden jubilates a rose bush throws pale yellow blossoms in the air scents need greeting breath wants blessing i will i do but so bright outside i love the light greedy for unadulterated vibrancy i don a cotton jumper chive stalk green with trousers dyed to out shine poppy fields for a medical appointment then to make the most in bed yet first grief whips sentience like a spinning top now calming drags my hodgepodge toy heart on a blasted string everything reminds of mag don t let me forget audio manifestm e may 12 2018 may 14 2018 marjojo2015 leave a comment i was thinking of my friend mag friel when i wrote these lines last year to most of the world she and thousands like her who suffer ed from severe m e bed bound in constant pain with a catalogue of spreading and ever more debilitating symptoms do not exist let us change that i will be tweeting the flyer from 2tired2riot today manifestme please share meawarenessday millionsmissing canyouseemenow audio only of the flyer i m afraid textling 103 april 5 2018 april 28 2022 marjojo2015 3 comments a tribute to mag friel 5 and now let s talk about rage we have seen too many notices about m e related deaths suicides these are not tragic losses they are shameful to most of the world mag and thousands like her bed bound in constant pain with a catalogue of spreading and ever more debilitating symptoms do not exist mag had severe m e for 25 years imagine what could have been achieved if research had not been impeded by the it s all in your head brigade years even decades of unmediated unattended suffering can drive a person to that last desperate step it is appalling that these conditions persist we need a radical change in attitudes and substantial funding for long overdue biomedical research now i mourn the life mag could have led the lives we re all missing out on our friend has gone hope had expired and the fight in her was done we are bereft the full tribute an edited version of my textlings incl voice recording has been published by m e association mag asked mourners to make donations in her memory to the 25 m e group instead of sending flowers to the funeral service isobel bennett has set up a fundraising page textling 102 april 4 2018 april 9 2018 marjojo2015 1 comment a tribute to mag friel 4 mag s funeral service was a wonder we had two months to organise in customary slow motion carers did the running mag s favourite songs were traced hymns she loved psalms poems two old friends met during their stay at the cfs m e unit at oldchurch hospital romford in 2004 long since closed were kept abreast and shared their memories still severely ill they perhaps understand most closely what mag went through and how she could have reached that point beyond endurance order of service lyrics cds were posted in advance to those too sick to come we have all felt wretched when missing pivotal events and hoped this time to infuse the dreaded there in spirit with a dose of lifeblood robin song which mag adored filled the church as people arrived most from the support group whose gatherings she had never been able to join there were chairs four legged and wheeled recliners and mats on the floor for lying down only an elderly couple had known our friend in blooming health neighbours since she had bought a battered house and set to doing it up by herself in the end she lived in a hospital bed in a darkened room on its ground floor unable to tolerate a hug or being washed because she hurt so much the vicar who years ago had visited to give her communion poignantly interwove the service with testimonies from friends reading for people who could not attend the depth of love for mag was palpable the last tune played was the archers theme and here we smiled mag s final words to us see you on the other side audio when i can textling 101 april 1 2018 april 9 2018 marjojo2015 2 comments a tribute to mag friel 3 i know hardly anything of mag s life before she fell ill in 1993 we were witnesses to each other s now there are clues though when i sent our shoes to the millionsmissing protest mag selected a pair of dainty black velours stiletto heels with pointed toes imagine her staccato gait upright and stable last year while cannes was in the news she wrote may 1991 sailed to cannes on my partner s yacht hoping to complete on 5 million film deal we d worked on for 4 years may 2017 achieved my goal of having bed sheet changed first time in months heaven happy me awareness day love and eternal hope for us all xxxxxx memories of who we were before m e seem almost fanciful when we need all our energy to make do mag s fortitude was striking her life shrank to the very basics of survival and still she rifled through day s pockets for wee pleasures the lack of funding for biomedical research and the disparagement of the m e community enraged her she faced complacent institutions and their indifferent even contemptuous representatives with unceasing anxiety and was let down in countless ways two beloved long term care givers worked hard to balance the scale and tended to mag s needs with boundless empathy and precision their insight into m e learned on the job does them proud if only it were easily transferable if only people wanted to know audio when i can posts navigation previous it s a bookling michell s textlings are carefully crafted and tightly focused chronicles piercing and full of gusto at times savagely funny they give glimpses of a life and many others bent out of shape by a debilitating and little understood disease most importantly though language is turned into adventure minute work when energy allows michell s prose is lucid luminous and entertains enthralls published by palewell press search for blogs i follow 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