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ection and ultimately to the special care nursery for us this meant open cribs low flow canula for oxygen and bottle feeding also as a result of the open crib it meant much more cuddle time for mom and dad which is always a good thing elena who as i write this is nearly a pound less than amelia progressed so well on her bottle feedings that the doctors said she had to go home so yesterday we loaded up the truck and took our first baby home as i sit here in our quiet home with elena sleeping away between feedings i can only think about the circuitous route that crissie and i have taken to parenthood when we bought this house we knew it was going to be the place where we were going to raise our children we had everything figured out or so we thought now after nearly 3 months in the nicu being at home with one of our babies seems like the most precious blessing we could ever imagine i joked recently that i was actually looking forward to screaming baby at 4am but truthfully i was looking forward to it that was until last night when it finally happened wasn t quite the warm and fuzzy moment i d imagined despite that we ll never again take for granted how easy it is to make babies the first time one of them tells us that they hate us or they come home with green hair or with something pierced that shouldn t be we ll remember this lesson it was so hard to make them that we can t just go make new ones if we screw this up pictures this was right before the big move to special care amelia on the left elena right elena in her car seat on the big ride first poop in a house baby like bouncy chair her first trick holding the pacifier by herself and trying to rip out her nasal prongs all at the same time this might seem like the biggest baby bed ever but it s not elena is weighing just a shade over 4 5 pounds she s eating well and even though being on oxygen at home was a little scary to think about it s a good reminder of what our little angel has been through we cherish her every breath and we re so thankful to have her home amelia should be home by the end of the week she s a whopping 5 pounds 10 ounces at the moment but she s been a little slower on feeds today she was stepped up to 8 bottle feeds in the special care nursery so the end is near for her she was the first one out of her mommy so it s only fair that elena was the first to come home we can t wait to get them together again amelia left elena right posted by alex and crissie at 3 03 pm 5 comments thursday june 17 2010 moving right along i ve been a very bad blogger lately i ve started and stopped this entry a few times and thus because things change so fast i ve had to start over each time i ll go long story short and say that overall the girls are doing well it s hard to believe that they are two months old today or roughly 35 weeks gestational age they are both getting close to four pounds they are both slowly becoming more able to maintain their temperature they re both getting at least one feed a day via bottle they ve grown so much and they re definitely starting to settle into their little personalities this is elena taking a bottle and amelia momma and her babies elena sleeping without her feeding tube so they re doing well their mommy and daddy are doing well we re so excited about the idea of going home but we re not allowing ourselves to get our hopes up yet their original due date was july 24th so realistically we ve still got a ways to go in the meantime crissie and i enjoy bathing them changing their diapers getting them dressed and holding them when we can our nicu nurses and doctors continue to be awesome time is flying by so fast and crissie and i often joke that we ll be sending them off to college before we know it stay tuned posted by alex and crissie at 7 55 pm 4 comments wednesday may 19 2010 trying not to jinx it d day 31 so our early nicu experience was so up and down that we ve developed a phobia of admitting when they re doing well for fear of jinxing it it s funny if you so much as mention the q word quiet in the presence of nurses you re sure to see them diving for cover expecting the ceiling to cave in it s a surprisingly superstitious place when the girls are doing well i feel like we re all in the dugout in the 8th inning with a pitcher who s got a perfect game going nobody say anything well it s been a few days and at the risk of tempting the fates we have to report that the last week has been pretty good in general maybe we re getting desensitized to the little blips but it sure feels like they re progressing well of late amelia little miss consistent is up to 6 5 ml of continuous feeding which is pretty much the maximum for her weight which is roughly 2 pounds 4 ounces she s tolerating her feeds really well and is growing pretty steadily she s back down to 2 liters on the vapotherm and she bounces around between 30 to 60 oxygen levels to maintain her saturations no ivs or picc lines overall she s in good shape she has the usual ups and downs the occasional apnea or bradycardia but she usually recovers well unassisted elena our drama queen is up to 6 0 ml of continuous feeding which is good too and she s also weighing in around 2 pounds 4 ounces she s tolerating her foods really well and seems to be stooling and urinating regularly i only mention it because early on it was an issue her breathing is improving although she had a setback since our last update her carbon dioxide levels in her gas samples were coming back high she was reintubated then got upgraded to cpap she s now back down to the lowest rate on the cpap and we re hoping she ll get moved back to vapotherm soon she looks like an underwater samurai which is to say uncomfortable as any samurai who s spent time underwater will attest no ivs or picc lines she just finished up some antibiotics for a little infection in the picc line but all seems to be better now on another note we have received more thoughts prayers words of support and genuine love from friends and family than we can ever possibly acknowledge so many of our close friends blog followers long lost pals distant families buddies on facebook current and former co workers and many complete strangers have reached out to us to show how much they care for us in this time of emotional awkwardness to know how many people are out there cheering us on is truly touching we still have our dark and twisty moments but they get fewer and fewer as the days tick away it s hard to think too much about what might have been when what actually is is altogether precious and awe inspiring we can t possibly be more grateful for this tsunami of support we ve received it s meant more to us than many of you will ever know though we haven t been able to respond to many of you lately know that your messages were received they were appreciated and they helped blasting this to the world via blog seems a wholly insubstantial way to communicate our appreciation but we re having to make trade offs for the sake of efficiency we are sincerely thankful that each of you are a part of our lives thank you posted by alex and crissie at 10 37 am 6 comments tuesday may 4 2010 nicu update d day 17 by the time i put the period on this sentence what i think i know about the condition about our daughters will be old news seriously it changes that fast first their pdas are open then they re closed then one s open again got that fixed the other one s open now it s closed check that feedings yep they re both feeding no they re not one of them is not anymore one s not pooping now she s pooping starting feeds stopping feeds why pdas open crap how s their breathing great extubated after a couple of days now on vapotherm one s three liters one s two liters one s on high flow canulas one s on low flow canulas room air trials maybe blood gases acidic reintubated oxygen 74 oxygen 100 back to vapotherm doing good sleeping comfortably her pdas open reintubated do not pass go do not collect 200 if this sounds familiar then you ve either worked in or had multiples in the nicu as i re read the above i continue to be marvelled that it s not an exaggeration at all this has become our life people will ask me how they re doing and i ll give them the latest then they ll ask me again three hours later at which point i ll tell them that whatever we were worried about earlier is now fine but now there s three more things we re concerned about people must think we have some sort of hyperactive munchausen syndrome by proxy i m just going to start telling people that they re slowly turning into sea turtles so here s the real latest scoop amelia is doing pretty well she was down to low flow canulas at room air but then her pda re opened up so they moved her back to 2 liters vapotherm and they gave her the 3 rounds of drugs to close it they think it worked so they resumed feeds and she seems to be doing fine her blood gases are checking out okay she has some minor swelling but she s peeing well enough so they aren t overly concerned elena is more of a challenge at 10 days she wasn t pooping a couple of enemas and some muco mist later i can t wait for her friends to read this one day we got some poop so we started some feeds then her blood started getting acidic and she stopped peeing so they stopped feeds and reintubated her now her gases look better and she s peeing she s intubated at room air for the moment she s struggling with ventilation even though her oxygenation is doing well the doctors think she s worn herself out for the moment so we wait a little while and regroup honestly don t you just want some pictures already amelia the laid back one crissie and i spend a lot of time seeing each other like this amelia s isolette elena says hello taking a noonie that s all for now you can be sure that anything you now know about how they re doing has since changed it s the only thing that seems to be consistent for now posted by alex and crissie at 7 56 pm 10 comments saturday april 24 2010 the wheelock quads are born part 1 we thought we were prepared for this saturday was a day that started like so many others since our stay at woman s hospital began i was on my cot and crissie on her bed my uniform that day was my mississippi state hooded sweatshirt my mississippi state shorts and my mississippi state fluffy slippers that look like clown shoes something about being in baton rouge makes me feel the need to exaggerate my maroon ness plus i m kinda known around the hospital for those ridiculous slippers and i have a reputation to uphold our plan was to watch movies law order and mostly vegetate all day crissie was feeling uncomfortable of course her belly was big she hadn t had a night of uninterrupted sleep in over a week and the straps on the uterine and heart monitors were irritating to the point of exhaustion she d been off antibiotics since early friday morning and all indications were that they had done their job the constant worry about garrison s leaking amniotic fluid hung like a dark cloud over our situation but there wasn t much we could do about it beyond hope my brother came to visit late in the afternoon because he was in the area and we hung out for about an hour he left because he could tell crissie wasn t feeling well around 5 00 crissie started to get really uncomfortable so we took off the monitors it was about this point that she started getting the chills we were still on high alert for fevers so we immediately started doing temperature checks she was running about 99 9 so we called in rachel our nurse who was assigned to us for the first time bless her heart crissie and i immediately assumed the same thing an infection was taking hold we d heard how quickly infections could wipe out a pregnancy if left unchecked but even we were surprised with the speed and ferocity of this illness within two hours of the onset of her symptoms her fever was 102 degrees the decision to get the babies out was made quickly by the time crissie was on the operating table she had vomited was convulsing and shivering so hard it was painful to watch i was truly scared for her life at that point however they got her on the table a little over 3 hours from the onset of symptoms pretty impressive considering the complex issues in play at 8 38 pm on april 17th amelia frances baby b was born first at 1 pound 7 5 ounces at 8 39 came elena marie baby c at 1 pound 15 8 ounces followed by garrison thomas baby a at 8 40 also weighing 1 pound 15 8 ounces at 8 41 lillian brooks was born sleeping drs st amant and diket performed the c section and were assisted by a myriad of neonatologists respiratory therapists nicu nurses and surgical assistants three of our top 4 nurses were able to make it in time for the surgery jami tanyl and tracy raced to the hospital and pitched in on their own time for which we can t thank them enough we wish that jennifer j would have been able to make it too but she was out of town and couldn t be reached a special thank you is reserved for dr st amant who gave us a bat signal to be able to reach him in the event of emergency we found him at the first sign of fever and he was at the hospital within an hour or so even though he wasn t on call and it was a saturday night crissie got loaded up with antibiotics and pain meds while three teams worked on intubating and stabilizing amelia elena and garrison our families stood by in the waiting room my dad and brother and crissie s parents and sister along with various other friends and loved ones nurse tracy took care of lillian she had the difficult duty of bathing and dressing her once crissie was stabilized she and i had an opportunity to hold lillian s hand and say our good byes despite knowing that she was already in heaven it was an emotional end to an emotional day and we appreciated the nurses who took such loving care of us by looking after her we got moved from our room in labor and delivery up to the part of the hospital known as mother baby it was a much smaller room and after nearly a month we d accumulated a lot of stuff most of that stuff got sent home with crissie s parents dr st amant helped us get rid of some of our remaining foodstuffs since we deprived him of his dinner his preoperative meal consisted of peanuts from our snack table once settled into the new room for the dénouement we were left with a few visitors but mostly left to ourselves it had been a day filled with the most intense emotions we d ever experienced fear love sadness hope we were exhausted not long after our last visitor left we collapsed into what we d hoped would be long well earned sleep it was not to be posted by alex and crissie at 5 58 pm 12 comments the wheelock quads are born part 2 after falling asleep sometime after midnight crissie awoke around 3 30 in the morning with an intuition that something was wrong thirty minutes later we got a phone call from the nicu asking permission to transfuse blood for garrison of course crissi...