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yet another never updated blog skip to main skip to sidebar yet another never updated blog sometimes i have something to say and here is where i say it lots of talk about disability ehlers danlos syndrome general geekiness family and friends and whatever shiny captures my attention at the moment saturday january 28 2012 is this thing actually working maybe i will reactivate it just to share this hilarious email from livejournal dear yanub blogspot com livejournal is planning to start deleting inactive empty accounts pursuant to our housekeeping policy your livejournal account yanub blogspot com is scheduled to be deleted in 15 days if you wish to reactivate your account to avoid deleting please visit http www livejournal com and log in within 15 days of this notification if you do not remember the password for your account you can reset it following instructions over here so does google known the lj is now in charge of blogspot posted by yanub at 7 32 pm no comments labels fail tuesday september 07 2010 farewell blogger i have migrated the contents of this blog to a new one hosted by wordpress i am tired of being constantly locked out of blogger at home unable to either comment on friends blogs or post to my own please visit me at iformaybe and reset your links if by some chance you actually link to me posted by yanub at 5 16 pm no comments labels blogger tuesday august 10 2010 me v plants plants win this past summer i moved back into austin to be near work i was just so tired of losing two hours a day to driving and of all the associated expense i have lately been reminded quite harshly of why i was willing to commute an hour into and out of town for work rather than live near work austin is a sink for pollution and pollen i have severe allergies we are not a good combination at any rate this past summer has been mild and moist a perfect growing environment for nearly any plant and what plant is most annoying come august ragweed and it is everywhere and worse than usual and i feel hellish i ve been on steroids since friday and can t say that i feel particularly better i can t get the crap out of my lungs and the medicines i m on while keeping me out of the hospital add their own layer of lethargy stupidity and clumsiness to that so helpfully already provided by asthma i do ok as long as i am semi reclining in bed but bills get paid by me getting out of bed and hauling my ass to work so into work i must go even though i get exhausted just surfing the net and work the air conditioner is broken lovely nothing to filter the air or remove a few ounces of water from it yesterday i ended up begging to go home for a bit just so i could rest enough to close up the office later since it was either that or me slowly crawling on hands and knees unable to summon the strength to get up the boss agreed fact people oxygen is vital to good health enough whining i have to get myself ready to go in again maybe the ac will be working posted by yanub at 10 14 am 2 comments labels asthma my exciting life sunday july 18 2010 shougai yakusha a while back i was reading an english language blog on life in japan the post was about a government report that seven of ten japanese people with disabilities have experienced discrimination the first comment from someone with disability and the other three were in a vegetative state and couldn t answer all comments after that agreed that the first comment was correct that discrimination is extremely wide spread and the report was likely understating the problem so it was with great interest that i read that kotaro yanagi a member of the ikemen acting troupe d boys had published an autobiography of his life since sustaining a severe brain injury great interest and despair because my ability to read japanese is pretty much limited to distinguishing the men s and women s toilets but now one of his bilingual fans is taking it on herself to translate for all the people who have bought the book but can t read it seeing as i was hopelessly pondering how expensive it would be to find someone to do that very thing i couldn t be more delighted she has just started and only has the prologue up but if you are curious you also might want to read hicchan s translations and like she says buy yanagi s book even if you can t read it at any rate i am very eager to read how kotaro has managed to continue as a performer and also i am delighted that he s still considered an ikemen actor i wonder if the same thing would hold for a young american actor who faced similar difficulties good looking only applied to men posted by yanub at 11 07 pm no comments labels disability japan pop culture sunday july 04 2010 ashley treatment writ large i have been incredibly busy lately and so quite late in checking blogs email festering sores that need attention ok i did manage to work in the attention to festering sores but i have had a deficit of web time yesterday i was finally able to work through my rss feed huzzah and good thing i looked instead of just marking all as read as i was tempted to do after three weeks of neglecting it for there in pharyngula was a post about some perversely diabolical doctors essentially recommending taking poison to prevent the calamity of lesbian daughters he is shocked and horrified calling it a convenient anti uppitiness pill for women and supplied a link to alice degner s criticism of the experiments at bioethics forum a commenter also gives a link to degner s commentary on the matter at psychology today while both of degner s articles are worth reading in full i call your attention to this sentence from her psychology today piece a democratic medical establishment does not alter people s bodies to fit regressive social norms it advocates for patients by demanding the social body get its act together this this this this is why the attacks on people with severe disability the failure to respect basic bodily integrity and human rights are not an attack on just people with disabilities it s convenient and self assuring to assume that what happened to ashley x the maiming of her body for her parents convenience is something that only happens to a special class of people for whom it somehow a good but it shouldn t be so hard for people to understand that there are a whole lot of groups of people who aren t convenient as david said ashley is me i am ashley and you are ashley too sorry i lost the link to david s blog post and now only have this cnn article and now a medical cure to fix the main problem of being inconvenient this is much in keeping with the historic destroy the indian in order to save him tactic of late nineteenth century us humanitarians and i understand the practice of forced deculturization also has been done by australians against native peoples there of course they say with a patronizing tone nobody actually hates the _________ disabled blacks indians women gays etc this is for their own good because we care and yes i suppose it is a better approach than phillip sheridan s nits make lice genocidal one but my dears it is the same damnable attitude if the other is acceptable only when made convenient the other isn t acceptable at all and what of those who can not be made convenient under any circumstance then there is sheridan s approach which the patronizing will let happen while they wring their hands over how sad it all is posted by yanub at 4 47 pm no comments labels ashley treatment civil rights disability rights homosexuality race women thursday april 22 2010 post deleted i just got tired of having to delete spammer comment requests back soon with posts that will hopefully not become time sinks from dealing with dingleberries trying to sell s e ks weird spelling in the hopes of killing spambot interest posted by yanub at 9 38 am no comments labels spammers are time wasters saturday april 03 2010 look ma an update it was bound to happen the past few weeks i had been thinking how well i feel how i was able to get all sorts of things accomplished and that my pain levels were completely manageable with hardly any narcotics at all oh sure there were other things asthma attack gluten contamination some minor narcolepsy type events but nothing all that serious thus i planned a busy easter weekend doing housework and getting paperwork taken care of which means of course that first thing this morning my right foot went out of place and all i can do is wait for it to reduce itself as long as i stay completely off it i m fine but as soon as i get up i m hurting i can t do housework can t cook can t rummage through my files looking for the papers i need because all that requires that i stand and walk and use my hands and i can t stand and have free hands since i need them to hold onto the canes to keep the weight off my foot not even my fancy schmancy shoes help here s hoping tomorrow is better because there is so much i need to do i want to at least put my new plants in pots posted by yanub at 10 22 pm 2 comments labels my exciting life older posts home subscribe to posts atom blog archive 2012 1 january 1 is this thing actually working 2010 11 september 1 august 1 july 2 april 2 march 1 february 2 january 2 2009 49 december 3 november 4 october 6 september 2 august 3 july 4 june 3 may 8 april 5 march 5 february 3 january 3 2008 85 december 6 november 11 october 9 september 5 august 11 july 9 june 5 may 6 april 5 march 6 february 10 january 2 2007 33 november 2 october 1 september 2 august 3 july 2 june 4 may 3 april 1 march 5 february 2 january 8 2006 13 december 2 november 6 october 5 2004 3 october 3 subscribe to posts atom posts all comments atom all comments my blog list media dis dat the global disability news network by and for disabled people launches in early 2026 6 months ago ballastexistenz hello world 2 years ago chewing the fat my psw 5 years ago cripchick what happens when the stock market crashes 5 years ago disability alert 63 desain rumah minimalis 2 lantai dan harganya terbaru 2020 6 years ago bums bellybuttons the view from here example paragraphs on arguments 6 years ago bad cripple worse wound care woes 7 years ago e is for epilepsy by paula apodaca waiting on the cure 7 years ago disability studies temple u rip jean mcwherter flynn 8 years ago andrea s buzzing about cartoon dung beetle and robot no 100 103 to beta or not to beta 8 years ago in sickness and in health special photos of a couple living with cancer 8 years ago diary of a goldfish 8 reasons decent people might mistakenly vote conservative 9 years ago frida writes reclaiming my voice naming names i will not be shamed anymore 9 years ago gary presley modern love 18 would my heart outrun its pursuer 10 years ago screw bronze fragile what are symptoms of herpes you already know 11 years ago life at full tilt i do not know if i can revive this blog but it s worth a try 11 years ago how to be an inspiration nursing a grievance 12 years ago one sick mother so a funny thing happened in the hospital 12 years ago wheelchair dancer ironside iii criminal minds luther 13 years ago a chronic dose a chronic illness blog a chronic dose has moved part 2 13 years ago eds alert newsletter news the olympic torch in ashbourne 14 years ago epilepsy in a nutshell brain awareness week epilepsy webinar 14 years ago the 19th floor say that again to my face 14 years ago road hog s ruminations new news 14 years ago gimp parade health care and non compete agreements 14 years ago general disarray hello world 15 years ago through myself and back again the language of shirkers and scroungers talking about illness disability and coalition welfare reform disability society 15 years ago life liberty and good coffee musical monday you re still the one 15 years ago medical humanities blog on health disparities inequalities in the u s 2011 report 15 years ago gluten free girl breathe 15 years ago our journey with ehlers danlos syndrome long overdue update 16 years ago chronic holiday no laugh track on this one 17 years ago pennies from heathens wow it s been a long time 17 years ago migraine chick state of the migraine nation 17 years ago cloud viper here i am zzz uh oh sorry dozed off 17 years ago the cushing s disease journey happy new year 17 years ago waiting for rain cat inna box 17 years ago standing tall 19 years later and where are we 17 years ago happy fun spaz crimes against people with disabilities wheelchair princess moon phases the life evolution of me girl dislocated y laurie stuff i ve recently read eds web pages ednf eds alert eds today pennies from heathens robert s eds photos general disability web pages ableize uk disability information bbc ouch disability blog carnival disability studies temple u disapedia pei disability alert ragged edge the road to freedom disability blog carnival about me yanub juggling family friends work and joint instability view my complete profile