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i just have no clue to nor no clue as to how they really affect him before during and after juggling some days c is better at juggling his spoons than others some days he may have woken up with fewer or more spoons than usual some days some spoons maybe bigger than shovels and c is intensely aware of spoons that he can usually ignore social interactions for c uses up lots of spoons so he very rarely does it and then only if he has spoons in abundance making him appear severely socially isolated c s spoons do not conform to many nt spoon rules c s spoons can be extreme obvious or invisible c s spoons like to keep me on my toes some days c drops his spoons one by one if i have been watching closely i can see this happening and sometimes i can distract him divert him or remove him where possible before he loses too many we have both learnt different tactics for clutching on to the few remaining spoons c learnt to put his fingers in his ears to hum to rock to focus on an object used to be a chopstick now it s his thumb nail i have learnt where to position him distract him with my predictable movements or by mirroring him using behaviours he recognises or maybe playful ritualised exchanges like i kiss him on the nose with my finger this seems to sometimes ground him if he hasn t lost too many spoons by then or my making happy sounds that he makes looking deep in his eyes positive and reassuring etc but if c didn t drop them one by one if all his spoons just spectacularly crashed and there is nothing he or i can do and he over loads melts down fragments whatever you like to call it all i can do to help him is to get him to a safe quiet place to recharge process pick up some of his spoons and i do the same as i also will have lost a few by then on reflection there is always something to learn something i may have missed and so the next time i try something slightly different yet familiar and recognisable we have built on this and evolved our routines opening up c s world i learnt to read the function of some of c s spoons by being sensitive mindful watching and listening it s been hard work and some things have taken years but c s arsenal of spoons that he can juggle is growing and changing all the time it has been so worth it and now we can go just about anywhere and try anything we have a connection he trusts me even when i get it wrong sometimes and drop the odd spoon posted by casdok at 09 26 36 comments email this blogthis share to x share to facebook share to pinterest labels spoon theory autistic saturday 20 december 2008 night to remember the music throbbed the lights flashed the dance floor was heaving i scanned the room and then i saw him the most handsome man there our eyes met only briefly but his radiant smile remained as i walked towards him i danced his dance we stimmed we rocked i squeaked with his squeaks he held my hand he held my hand i felt we were the only two people there worries forgotten as we lived in the moment i felt connected the evening was then cut short as cs staff had to take him back end of shift but it was a magical night cs night club debut one i will remember for a long time no fingers in ears cs first taste of alcohol did i mention he held my hand he was fasinated by the smoke merry christmas everyone posted by casdok at 08 37 170 comments email this blogthis share to x share to facebook share to pinterest labels local night club put on night for disabled people thursday 14 august 2008 what matters there are many myths and theories surrounding autism autism has been around longer that it has had a name and much longer than many of the theories below were even invented here s a light hearted collection of some of the theories that are around did i shampoo our dog or was i specially chosen by god when pregnant was i stressed or did the devil my son possess is c the next stage of evolution in the air was there pollution did i conceive in late spring do i remember if it was raining is c a crystal child waiting to ascend or is he one of the mutant x men was it the dental fillings i had or the triple vaccine mmr jab was it my lipstick that was red or the mobile phone near my head could it be a food allergy or my disordered personality was it the smoking and drinking which was bad or c having an older dad was i a cold refrigerator mom who always had the tv on or does c have an extreme male brain many things that would explain c wasn t held to ransom nor is he a victim or a madman words hit like a fist like retard or he s a brat whom i didn t spank hard it doesn t matter to me what was the cause or the whys and wherefores as if you look at my family tree its more than plane to see what matters is the here and now not the why not the how autism has made c who he is today i wouldn t have him any other way i support c and help him as best i can i love him for who he is c a wonderful young man posted by casdok at 12 44 112 comments email this blogthis share to x share to facebook share to pinterest labels some of the many therories autism tuesday 8 april 2008 films related to autism even if you don t know very much about autism i m sure you will have seen or heard of a few of these please let me know the ones i have missed 1962 to kill a mockingbird 1963 a child is waiting 1969 change of habit run wild run free 1972 a day in the death of joe egg brother carl 1974 silence 1977 a circle of children cube 1978 lovey a circle of children part 2 1979 being there son rise a miracle of love 1980 touched by love 1981 the pit 1986 the boy who could fly childs cry 1988 rain man 1989 the wizard 1990 backstreet dreams when you remember me 1991 little man tate 1993 family pictures what s eating gilbert grape house of cards aupair when the bough breaks thirty two short films about glenn gould 1994 silent fall nell forrest gump david s mother the innocent 1994 relative fear touch of truth 1995 under the piano silence of adultery 1996 the boys next door george 1997 journey of the heart mimic possum cube 1998 i am sam mercury rising down in the delta spoonface steinberg little voice when the bough breaks ii perfect prey nightworld lost souls 1999 molly the other sister 2000 dancer in the dark 2004 miracle run killer diller 2005 mozart and the whale magnificant 7 2006 snow cake 2007 her name is sabine benx yellow brick road 2008 the black balloon autism the musical tropic thunder a nationwide boycott of this film is being called because of the movie s open ridicule of people with learning disabilities just add water treasure diversity if you could say it in words chocolate 2009 adam mary and max city rats nobody nowhere donna williams in development the horse boy 2010 my name is khan dear john temple grandin a mothers courage ocean heaven wretches jabberers dad s in heaven with nixon quantum apocalypse 2011 loving lampposts 2012 white frog extremely loud and incredibly close posted by casdok at 06 47 87 comments email this blogthis share to x share to facebook share to pinterest labels casdoks autistic film list thursday 6 march 2008 star trek the future casdoks log supplemental with advancements in technology the inspirations on star trek may one day become reality and just think what difference it could make to our children hypo spray a needless injection c cant have any injections as its just too difficult and dangerous this would be make such a difference and if they could take blood samples this way to tricorders wouldn t this make life so much simple to just be able to scan our children to find out what was ailing them this would have saved c so much trauma universal translator wonder if this could be used in review meetings so i knew what they were really trying to say as c doesn t speak to decipher his high pitched squeals and other noises would be wonderful or would it cloaking device now this could be useful i will let your imagination run with this one food replicator no more cooking or shopping in supermarkets transporter how useful would this be no more waiting in traffic jams queuing for public transport getting your child into the bathroom etc i m sure a few of these are only a matter of time i was given this beautifully hand crafted quick wit award along with maddy by angela from memoirs of a chaotic mommy for making her laugh and cry angela has asked me to pass it on to 5 people who make me laugh many blogs have made me laugh and cry so not an easy choice but i would like to pass this award onto magneto bold too a dust bunny in the wind ramblings of a madman fullofbullshite and mother s pride hope you enjoy posted by casdok at 07 10 68 comments email this blogthis share to x share to facebook share to pinterest labels star trek future autistic children wednesday 6 february 2008 happy birthday lego happy birthday lego lego was 50 years old last month i dont live far from legoland i certainly recomend it bit pricey though there are amazing things that people have biult out of lego art buildings lots of star trek things a computer a lie detector and even steven hawkins in his wheel chair i also found lego therapy and some work has also been done with autism google seems to have a special afinity with lego do you posted by casdok at 07 55 44 comments email this blogthis share to x share to facebook share to pinterest labels lego amazing wheelchair lego therapy wednesday 9 january 2008 everyone has ability if you would like to know more click here posted by casdok at 07 40 42 comments email this blogthis share to x share to facebook share to pinterest labels everyone has ability given a chance autistic acceptance tuesday 8 january 2008 x men classes i recently watched a couple of the x men films again and thought i would write a post about it but whilst googling i see its been done before two interesting posts about the x men movies from the perspective of disability rights are a last stand against cure from the magazine ragged edge online and more thoughts on autism inspired by the x men film trilogy from the blog 29 marbles and i m sure others if you re not familiar with the x men series of movies or the marvel comic books on which the films are based the basic story is of a group of mutants and their struggle to gain acceptance by non mutants but also whilst surfing i found that you can send your children on x men classes i m surprised there aren t any autistic star trek academies or rain man training centres or what about a mr bean autistic comedy club or maybe there are reading american blogs about autism we here in the uk are in comparison are very quiet we don t have as yet the likes of jenny mccarthy or ransom notes or x men classes my non blogging english friends have never heard of these oh we did though start the mmr scare jok ing aside i take c back to boarding school today whilst washing and packing with mixed feelings about his return i started reading about the tragic case of 3 year old katherine mccarron for those of you in the uk who may not have heard her mother karen a doctor smothered katherine to death in may 2006 katherine was autistic the trial has just started autism vox will im sure keep you updated posted by casdok at 11 29 35 comments email this blogthis share to x share to facebook share to pinterest labels x men classes star trek acadamy the trial of karen mccarron has begun older posts home subscribe to posts atom if c could speak get to know an autistic adult about me casdok united kingdom cs autistic spectrum difference is ok single parent of c a 25 year old pre verbal autistic young man view my complete profile justiceforlb 107days pbs cqc chris hatton blog difficult families or incapable environments an endemic problem of family bashing ensuring quality services helping health and care services manage difficult patient behaviour improving health and lives learning disabilities observatory improving practice supporting people whose behaviour is perceived as challenging julie beadle brown blog kent challenging behaviour network national launch of quality of life standards pbs and active support positive behaviour support blog prof hastings blog quality assurance briefings tlap scie the avon wiltshire positive behavioural support network the tizard united response uk organizations i have found useful british psychological society improving health and lives scie nice norah fry centre bristol tizard centre community care search for grants blue badge scheme and asd the challenging behaviour foundation putting people first freedom of information requests disability alliance the national autistic society mencap nhs choices carers direct bild carers uk action for advocacy circles network in control princess trust carers treehouse learning disability coalition contact a family crossroads radar oaasis advice and support family fund merlin s magic wand merlin annual pass dial disability benefits ipsea find your mp intensive interaction intensive interaction phoebe chaldwell dave hewett mencap factsheet on ii bild factsheet ii in leeds us in a bus regional support networks uk disability rights carers and personalisation person centred active support engagement in meaningful activity essential standards of quality and safety equality act 2010 suit you sir qualitative study long stay hospital care free download on the law relating to carers care support independence the right to live and be different equality and human rights commission people first every child matters charter of rights for autistic people valuing people london autistic rights movement 1 million 4 disability respond disability law service disability rights watch carer watch health watch uk government papers recognised valued and supported carers carers and personalisation improving outcomes practical approaches to improving the lives of disabled and older people through building stronger communities six lives progress report raising our sights autism strategy personalisation through person centred planning state of care no secrets the care quality commission ofsted valuing people now mental capacity act 2005 white paper a life like any other better services for people with an asd services for pwld and chalenging behaviour evaluation of individual budgets high quality care for all carers at the heart of the 21st century aiming high for disabled children safeguarding adults putting people first arts music books and film etc something about us list of autism related films the lives they left behind stephen wiltshire derek paravicini attitude is everything special olympics crippen carousel artism today cafe press nas books jessica kingsley publishers the miracle project song open every door to mark autism sunday innocent boy joseph s song mindblind a song for autism alice s song poem hands off its my home my poems rap if c could speak what matters i want day centres prisoner on mars missing you his smiles are priceless of other autistic interest 10 myths about autism aspie quiz autism 100 autism hub autism myths autis...